The Unique Needs of Families Caring for Seriously Ill Children

 Playback Link for Members
2020 Education Sponsor
Live NAGC Webinars are
made possible by funding from:
Premier Sponsor
New York Life Foundation 

May 12, 2020 | 2:00 p.m. Eastern | 11:00 a.m. Pacific (1.5 hours)
Free for NAGC Members
$60, Guests  (or become a member HERE to receive member discounts on NAGC Online Learning.)
$75, Guests with Continuing Education Credit

Presentation Description

While the death of a child is unimaginable, for nearly 45,000 families it is a reality every year. With the increasing number of children coping with chronic, complex and life-limiting conditions, it becomes more important we develop competencies and confidence in supporting bereaved parents and siblings. During this webinar, we will review key opportunities from time of diagnosis through the illness experience and into bereavement support that can help promote the healing and health of a family- and their community- following the death of a child. While it can be very difficult to shift “cure” to “care”, teams can develop skill sets that focus on optimizing the quality of life, evaluating the physical, emotional, social, developmental and spiritual needs of a family caring for a seriously ill child. We will highlight an interdisciplinary approach to supporting families through anticipatory grief, redefining hope, and the importance of meaning-making and legacy work.

critically ill


At the end of this webinar, participants will be able to:

  1. Identify the unique psychological, social, developmental and spiritual needs of a seriously ill child and their family.
  2. Describe how patient-and family-centered care and cultural humility honor individual values and decision-making in the care of seriously ill children and their families.
  3. Identify at least three supportive techniques that promote healing and hope from the time of diagnosis through emotional journey into bereavement care for families caring for seriously ill children.


About the Presenters

Annie Zisk is a Certified Child Life Specialist who currently works in the Pediatric Intensive Care Unit (PICU) at Children's Hospital of Philadelphia (CHOP). In this role, she provides comprehensive developmental and psychosocial support to critically ill children, their siblings, and their families. Prior to this role, she completed a psychosocial fellowship in pediatric hospice and palliative care with the Pediatric Advanced Care Team (PACT) at CHOP and her child life training at Johns Hopkins Children's Center in Baltimore, MD. She holds a specific interest in Patient-and Family-centered care, having completed an internship with the Institute for Patient-and Family-Centered Care in Bethesda, MD. Annie holds degrees in Psychology and Art & Design from the University of Michigan.

Kristin James, LCPC, currently coordinates the Greater Illinois Pediatric Palliative Care Coalition and Child Loss Coalition of Chicago. She has specialized in working with families coping with illness, trauma and loss for over twenty five years. Kristin has provided clinical consultation and extensive training, advocacy and education to medical teams, community agencies, and school systems throughout the Chicagoland area. She is an experienced clinician and has provided individual, family, and group counseling. Kristin developed a benchmarked program for Pediatric Bereavement Care at Lurie Children's Hospital/Children's Memorial Hospital and is nationally recognized as an expert in grieving children and bereaved parents. She has also participated in and published numerous research studies. Ms. James received her Masters in counseling from Loyola University.


Continuing Education

CE Learning Systems, LLC:

American Psychological Association
CE Learning Systems, LLC is approved by the American Psychological Association to sponsor continuing education for psychologists. CE Learning Systems maintains responsibility for this program and its content.

National Board for Certified Counselors
CE Learning Systems and National Alliance for Grieving Children (NAGC) are cosponsors of this program. The cosponsorship has been approved by NBCC. CE Learning Systems is an NBCC Approved Continuing Education Provider, ACEP No. 5951. The ACEP solely is responsible for this program, including the awarding of NBCC credit.

New York State Education Department's State Board for Social Work
CE Learning Systems SW CPE is recognized by the New York State Education Department's State Board for Social Work as an approved provider of continuing education for licensed social workers #0060.

New York Education Department for Licensed Mental Health Counselors
CE Learning Systems, LLC is recognized by the New York State Education Department's State Board for Mental Health Practitioners as an approved provider of continuing education for licensed mental health counselors. #MHC-0072.

Texas Board of Social Work Examiners
CE-Go, a service of CE Learning Systems, is approved to offer continuing education courses by the Texas State Board of Social Worker Examiners (#6460). CE Learning Systems maintains responsibility for the courses.

Many state licensing boards accept APA approval to meet CE requirements. If you are a Counselor, Psychologist, Social Worker, or MFT, please check with your licensing board to see if APA is acceptable.

CE Certificate and Evaluation Process

Approximately 3 days after the conclusion of the event, you will receive an email link to CE-Go (This link will be sent to the email account you used to register for the event).

 Upon accessing the CE-Go website, you will be able to:

  • Complete an evaluation forms for each session you attended
  • Download your continuing education certificate in a PDF format

If you have any questions or concerns regarding the CE-Go process, please contact CE-Go at 877 248 6789 or by email at .

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